March is not only National Colon Cancer Awareness Month, it’s also National Kidney Month. In 2012, I attended Kidney Action Day on the Hill, met spokesperson Laila Ali, got my kidney screened, and learned plenty about the cause and prevention measures. http://www.pamelaspunch.com/american-kidney-fund-celebrity-health-champion-laila-ali-looks-for-a-ko-against-kidney-disease/
This year, the American Kidney Fund hosted its fifth annual Kidney Action Day on the Hill on March 5th. The event was held in the Rayburn House Office Building, and featured remarks by Representative Tom Marino (R-PA), Representative Jim McDermott (D-WA), Representative Marcia Fudge (D-OH), American Kidney Fund president and chief executive officer, LaVarne A. Burton, and patient-advocates from around the country. During the event, the American Kidney Fund provided free kidney health screenings, kidney health education and fun fitness activities.
Additionally, 10 patient-advocates from the American Kidney Fund’s Advocacy Network, which includes more than 3,200 kidney patients and caregivers, met with their Congressional representatives to share personal stories of living with kidney disease or caring for a loved one who suffers from this chronic condition. Each advocate met with their legislators and discussed key issues that included: maintaining access to quality care for people living with kidney failure, the importance of providing lifetime immunosuppressive drug coverage for kidney transplant patients and the importance of adequate funding for the Medicare ESRD program. Advocates also urged lawmakers to increase federal support for institutions and organizations engaged in kidney disease research, education and prevention efforts.
“We were proud to bring such a dedicated group of patient-advocates to Washington to share their stories with Congressional offices,” said LaVarne A. Burton, president and chief executive officer of the American Kidney Fund. “Individuals living with kidney disease face tremendous challenges, and our patient-advocates play an important role in providing Congress with a glimpse into the lives of individuals who are directly impacted by health policy decisions made in Washington.”
Learn more about the work American Kidney Fund does HERE.
Pamela Lynne Sorensen is the founder of Pamela’s Punch, a platform for profiling people who "make it happen" in the Capital region, reviews & topical blog posts. She launched Punch Enterprises, a connector consulting business in 2015 and Pacific Punch based in LA, in 2012. Pamela comes from an extensive background in sales and business development from a variety of industries, has been involved with charities and fundraising for a number of years and holds several Board and leadership positions. She currently resides in Arlington, VA. Follow her on Twitter at @pamelaspunch.